The Endometriosis Association
The Endometriosis Association was the first organization in the world created for those with endometriosis. As an independent self-help organization of women with endometriosis, doctors, and others interested in the disease, it is a recognized authority in its field whose goal is to work toward finding a cure for the disease as well as providing education, support, and research.
Founded in Milwaukee, Wisconsin in 1980 by Mary Lou Ballweg and Carolyn Keith, it is now a worldwide, independent organization. It has grown to such an extent that it now has a network in 66 countries throughout the world. Information is available in 30+ different languages.
Since its creation, the Endometriosis Association has achieved many goals, one being the undertaking of massive educational projects involving mailings to every gynecologist, hospital, and college health service in the US and Canada. It has also published three books: Overcoming Endometriosis, The Endometriosis Sourcebook and our most recent book, Endometriosis: The Complete Reference for Taking Charge of Your Health.” A wide range of literature, fact sheets, and DVDs can also be obtained through the Association.
Operating as a non-profit organization, the Association aims to establish funds to enable more research into the causes of endometriosis. As part of its research program, the Association has funded and assisted a number of researchers in various parts of the world. It also maintains a large data research registry and continues work on the relationship between dioxin and endometriosis, a relationship the Association discovered.
The Association teamed up with the prestigious Vanderbilt University School of Medicine to create a dedicated research facility to address the mechanisms responsible for causing endometriosis. Among other research projects supported by the Association have been a study of the dioxin-exposed young women in Seveso, Italy; publicity and help obtaining patients and families for a genetic study at Oxford University, England; support for research on a non-invasive diagnostic technique by a U.S. researcher; and small grants and tissue samples for a number of researchers studying dioxin and related toxins and endometriosis.
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The Endometriosis Association, an international nonprofit organization with members worldwide, focuses on three equally important areas of emphasis: First, we provide support to girls and women suffering from endometriosis—a chronic, painful hormonal and immunological disease—and because families are often impacted by the debilitating effects the disease has on their loved ones, we extend our support services to them as well. Second, we implement education programs and produce informative materials for those affected by the disease, for the public and for medical professionals. Third, we conduct and promote research in collaboration with leading medical researchers worldwide in order to find better treatments and ultimately a cure for this life-altering, potentially disabling disease. We can be found on the internet at www.EndometriosisAssn.org.
Board of Directors (Doc)
Invest in Your Health and in the Health of Your Loved Ones
8585 N. 76th Place
Milwaukee, WI 53223 USA
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