Endometriosis Association: Advancing Support, Education & Research
The Endometriosis Association provides support to those affected by endometriosis and related diseases, educates about the disease, promotes and conducts research.
What We Do
Our Impact on Endometriosis: Research, Education & Support
The Endometriosis Association was the first organization in the world dedicated to endometriosis – giving a voice to women, girls, and families affected
RESEARCH
- First to establish an endometriosis research registry, largest in the world
- First to lead patient-driven research in the field of endometriosis science and medicine
- $8,013,723 direct dollars for research (direct funding to research groups in six countries and our research programs at Dartmouth, Vanderbilt, NIH, and EA staff working on research)
EDUCATION & FUNDRAISING
- First to develop extensive lay literature on endo, translated in 31 languages; over 4.1 million brochures distributed; hundreds of thousands viewed online
- First to publish four comprehensive books on endometriosis, one in Spanish
- Instrumental in helping raise more than $21 million indirect dollars for research
SUPPORT
- First to organize support groups and develop national organizations worldwide; had members and groups in 66 countries and over 200 support groups in the U.S. and Canada alone
- First to create a global network of highly-motivated individuals touched by endo (women, families, physicians, medical researchers)
- Set up program and models of support, including Crisis Call Listeners, Prescription Drug Savings Plan, Healthcare Provider List (invitation only), Correspondence Network/Request for Contact, Teen Mentor Program (since 1986)
